Education

Video

Alzheimer’s: The Caregiver’s Perspective

This video is a spot-on representation of what caregivers go through.

From diagnosis to saying the long goodbye, caregivers share their diverse experiences of caring for loved ones in the world of dementia. Alzheimer’s is more than memory loss; it affects many generations and is the 6th leading cause of death in the United States. Teepa Snow, Loretta Veney, Bob Schaefer and many more explain how they creatively navigate the frustrations, sorrows and complications of caring for a loved one who can no longer function safely on their own.
This documentary is a production of the Community Idea Stations and WCVE PBS.

For more information visit http://ideastations.org/alzcare

Alzheimer’s at 55: Family talks about living through the disease

There is no family history. No one was expecting an active, vibrant man would feel lost walking in a park he’s known most of his life.
Author: Marie Saavedra
Published: 10:20 PM CST November 13, 2017
http://www.wfaa.com/video/news/alzheimers-at-55-family-talks-about-living-through-the-disease/287-2799515

Following a couple from diagnosis to the final stages of Alzheimer’s

An excellent story that ran on 60 Minutes on April 22, 2018.

https://www.cbsnews.com/news/alzheimers-disease-following-a-couple-from-diagnosis-to-the-final-stages/


Links

U.S. Department of Health and Human Services: Alzheimer’s Disease & Related Dementias 

Caregiver Stress – Care for Yourself While Caring for an Aging Loved One


Reading

The Comforting Fictions of Dementia Care

https://www.newyorker.com/magazine/2018/10/08/the-comforting-fictions-of-dementia-care

Parade Magazine Series on Caregiving

Parade Magazine has run a series called Caregiver Boot Camp

Holiday Tips for Caregivers

The holiday season can be hard for loved ones, caregivers and families. Here’s a page of tips from Teepa Snow.

 

The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss (A Johns Hopkins Press Health Book)
Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers
The Sea is Wide: A Memoir of Caregiving
Cognitive Impairment Care Planning Toolkit
Medicare’s Cognitive Impairment Assessment and Care Planning Code: The Alzheimer’s Association Expert Task Force Recommendations and Tools for Implementation.
Contains information about Coding for Medicare. Also contains guidelines for assessments used by physicians.
Conversation Starter Kit
Designed to help families and loved ones of people with Alzheimer's or other dementias have that conversation about end-of-life issues.
Unforgettable: The Bold Flavors of Paula Wolfert's Renegade Life . UNFORGETTABLE: The Bold Flavors of Paula Wolfert's Renegade Life tells the incredible life story of food legend Paula Wolfert, who was diagnosed with Alzheimer’s disease in 2013. A culinary biography written by Emily Kaiser Thelin and photographed by Eric Wolfinger, it shares 50+ of her most unforgettable dishes, and explores the relationship between food and memory.
My Parent's Keeper: The Guilt, Grief, Guesswork, and Unexpected Gifts of Caregiving
The Seasons of My Mother: A Memoir of Love, Family, and Flowers by Marcia Gay Harden